May 9 was a Sunday and Mothers’ Day this year. Nine years ago it was a Tuesday. On that day we had a baby boy with lovely eyes and long eyelashes. Throughout the pregnancy I had gone for regular appointments at the antenatal clinic, as all expecting mothers do in Finland.
I felt a bit nervous about the second trimester sonography. I was hoping to find out if we were having a boy or a girl and if the baby was healthy. I thought about the health problems in our extended families, aware that something might go wrong with the baby. But everything seemed to be alright. I saw we were expecting a baby boy. The little one was moving actively but in such a way that he never showed his face to us. It seemed amusing, but the doctor suggested another appointment for facial sonography within a couple of weeks. I felt frustrated. What could be wrong with his face, I wondered. The control visit did not take long. The doctor did facial sonography and said everything was fine.
On that Tuesday nine years ago I had a quick delivery. The baby had to be taken into an incubator soon after birth, but they let me hold him for a short while, so that I saw his face. The baby was sweet, but his lip was a bit strange. “What’s wrong with his lip?” I stammered. “It seems he has a cleft lip,” the midwife said and took him away.
I shivered with cold under my heating blanket, my mind in turmoil with worry. I was lonesome for my baby. I only wished to be able to hold him. I was upset about the midwife’s decision to take him away, though I understood it was all for his benefit.
I was quite confused. I was wondering what a cleft lip meant. I had never even heard about it. Why did the doctor not see it in that facial sonography? Over the next few days, I got some more information and gradually began to understand what was wrong. Our baby was born in Raahe, but the very next day I got a phone call from a specialist nurse in Oulu University Hospital. I felt safe in the care of the medical professionals. The obstetric department in Raahe was due to be closed a month after my delivery, and one of the nurses gave me the specially designed feeding bottles meant for babies with a cleft lip or palate. “You take these,” she said. “No-one will need them here anymore.”
At home my husband calmly said that we will accept whatever we are given by God. To us, our little boy was beautiful. God had created him in His own image, and he was perfect.
I remember a moment when we were filling our baby’s data on some official form. His cleft lip was entered as ”malformation”. That word made me shudder. It seemed terrible to think that my lovely baby was somehow malformed. The nurse also asked me if I found it difficult to care for him. The question seemed strange, and I even felt a bit offended. I told her my maternal love and caring instinct were all the stronger now that I knew my baby needed special help and care.
As recommended by the plastic and maxillofacial surgeons of the university hospital, our baby had two operations during the first year. The plastic surgeon was a Canadian who understood Finnish, but spoke mostly English. He looked at our baby’s eyes and said, ”beautiful silmät”. I remember very clearly that small comment he made while explaining the treatment plan. Two small words that were extremely significant to me.
During the weeks we spent in hospital my feelings fluctuated between fear and relief, anxiety and calmness. I knew what would be done to our baby and why. I was explained everything in detail and shown a draft of the surgical procedure. Although I trusted in those professionals, I felt my heart squeezed by anxiety when the doors of the operating room closed. At the time of the first operation our baby was only three months old.
For all that difficult time we were surrounded by a solid safety network. Family members and friends helped us in many ways, and we experienced care and love that carried us through the hardest part of the process. While I was still on the obstetric ward, I got a phone call from a person I had only met once. I marveled at the warm and gentle words of that nearly unknown person who called me when I was facing a new life situation. Her kindness and encouragement were very important to me. She reminded me that cleft lip was something that could be treated. ”You will manage,” she said. She has since become a dear friend over the years.
Now we celebrated our son’s ninth birthday. Until now, everything has gone well. He will have another operation in a few years’ time, but I try not to worry about it too much yet.
I worry about many different things, but in the case of this baby boy we experienced something we had not even known existed. We cannot know what our Heavenly Father has in store for us. But I have full confidence in the competence of Finnish health care staff. We are in good hands in that way, too.
Text: Suvi Myllymäki
Translation: Sirkka-Liisa Leinonen
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